Inspirational Imperfections

Every day is a struggle, but I try to focus on what makes me want to fight my disease. My children, my husband, my family & friends. When I was first diagnosed with Limb Girdle Muscular Dystrophy, I told myself that I would fight, I would advocate to others, I would rise above my debilitating disease and be an inspiration to others. I was successful in doing this until my pain decided to move in and unpack! It’s absolutely exhausting being in pain constantly. You forget what it’s like to not feel pain. You fake your smiles to make others feel comfortable. Who wants to hear you complain 24/7? The pain makes me feel depleted & I wonder if I will ever get some relief. Today I choose to rise above the pain and try to be happy. It’s not going away anytime soon so I have to figure out how to live with it. Because I want to LIVE! Gonna focus on my faith and family. 💚💙


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I am a 32 year old mama & wife! After a long journey of seeking answers, I was recently diagnosed with Limb Girdle Muscular Dystrophy 2J. My life is changing every day. I believe knowledge is power, so I am determined to learn as much as possible about my debilitating disease. Living a "normal" life with LGMD2J is a constant struggle, but I will overcome my bad days and keep faith that I will overcome obstacles. I am a strong woman even if my muscles say otherwise!💚💙

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